REPROCELL will collect, store and use information provided at registration to match research volunteers to biological and medical research studies. Studies will be sponsored by REPROCELL or its academic and industry partners.
REPROCELL will act as the data controller and the data processor when performing these activities. This means that REPROCELL will be responsible for looking after the information you have provided and for using it properly.
Personal identifiable information will be retained until closure of the ReproRegistry by REPROCELL or if a request is made by a registered volunteer to withdraw.
This information we will collect will include:
- Full name
- Date of birth
- Contact details including address, phone number and email address
- Demographic information e.g. gender, ethnicity, BMI etc
- Health-related information e.g. on your lifestyle, disease history, medication etc.
Collected information will be assigned a unique reference number and separated into personal identifiable information e.g., name and contact details, and non-identifiable information e.g., health information. Non-identifiable information will be used to match research volunteers to a research project, to perform the research or to check records from time to time to ensure the information is up to date. Personal identifiable information will only be used for re-contact purposes.
All information will be kept safe and secure. Only authorised registry staff will have access.
If matched to a study, some information (non-identifiable) may be sent to researchers in this country and other countries worldwide. Personal identifiable information will not be shared. If shared, all researchers must follow REPROCELL and GDPR standards for keeping information safe.
Reports or papers written during or on completion of a study will be written in such a way that no-one will be able to work out (re-identify) participants.
More information on how REPROCELL will use information collected through the registry can be found in the ReproRegistry Privacy Notice.
Your Choices
- You can withdraw from the registry at any time and without giving a reason. Your contact and health information will be removed from the database.
- You can withdraw from additional registry communications (newsletters etc.) at any time and without giving a reason.
- You can change your information. If requested by you, we can update the information that we hold (contact information, preferences etc.)